Years ago, Christi’s healthy two-year-old daughter, Rylie, came down with the H1N1 virus, and neither of their lives have ever been the same since. Rylie was admitted to the hospital, but her condition continued to worsen. She started having seizures, stopped breathing and went into a coma. Doctors gave her no chance of survival, diagnosing her with Acute Disseminated Encephalomyelitis. Miraculously, Rylie pulled through.

Now 12 years old and most recently diagnosed with Anti-MOG Associated Encephalomyelitis, Rylie’s white blood cells attack the nerves in her brain and spinal cord when exposed to a virus—causing inflammation in her brain. Her speech, motor and processing skills begin to decline and suddenly she’s unable to recall simple words or perform simple maneuvers, like opening a door or zipping her clothing.

Heartbreaking to watch, Christi has done all she can for her daughter, exploring treatment at Mayo Clinic and with world-renowned neurologists. In order to suppress her overactive immune system, Rylie receives daily oral chemotherapy and monthly infusions of high-dose steroids. She’s also been diagnosed with Amplified Pain Syndrome, often seen in people with neurological conditions. But despite her health and regularly missing school, Rylie has managed to maintain her academics and her hopeful personality—her teachers describing her as a “bright light” in their classrooms.

Christi works tirelessly to sustain a positive environment for both Rylie and Rylie’s nine-year-old brother. As a single mother, it’s been increasingly difficult, and she’s began to fall behind on bills. Working as a teacher, she’s been taking significant deductions in her pay after exhausting her paid time off to care for Rylie. We’re honored to have the chance to help such a determined, loving family. We’ve taken care of their rent for the next year, and helped with groceries, clothing and other necessities as well.

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